The Lighthouse Projects
Tuesday, March 1st, 2016
Ballsbridge Hotel Conference Centre, Dublin 4
The project team consisted of representatives from the Health Service Executive (HSE), the Health Informatics Society of Ireland (HISI), and the European Connected Health Alliance (ECHAlliance).
The event was promoted on the eHealth Ireland website and the dedicated Ecosystem website primarily, and also on the HISI and ICS websites. The event was also promoted on the ECHAlliance website page. All stakeholders were asked to promote the event on their websites also. Each website included an introduction to the Ecosystem and a description of the meeting theme. Once the agenda was finalised, it was added to the websites.
An email announcing the event was sent out weekly to the eHealth database including key hospital, industry, academic and executive personnel, HISI and ICS members, and previous Ecosystem attendees. All stakeholders were asked to inform members and contacts also.
The event was promoted on Twitter by the project team. The hashtag #eHealth4All was used with a strong uptake prior to the meeting, and by attendees on the day of the event resulting in a top trend in Ireland.
Theme and Justification
Electronic Health Records are a cornerstone of the eHealth Strategy. The Electronic Health Record Lighthouse Projects were selected for the focus of this Ecosystem meeting to generate a high quality set of recommendations for advancing these important projects in Ireland.
The Epilepsy Lighthouse will be launched in order to better describe the benefits that technology and electronic health records can offer to patients.
The Haemophilia Lighthouse will work with the haemophilia community to further develop and implement technology that will allow patients access to mobile technology to facilitate them in receiving and providing important information regarding their medical condition.
The Bipolar Lighthouse will evaluate patient and clinical need in relation to building a secure technology-enabled clinical system which will support information integration and provide a clinical support tool for patients and their medical team.
The main objectives of the meeting were:
- To introduce stakeholders to the three lighthouse projects and their leads
- To compile expert opinions on the challenges and solutions each project face
- To support and motivate the HSE to advance these projects
The consensus, from the consultation process, was that this meeting needed to provide clarification around the projects from the perspectives of all stakeholders within the sector especially service users. It was agreed that the programme would provide a brief overview of each lighthouse project and time to collaborate with expert facilitators to highlight the potential challenges that might be encountered and to explore possible solutions for overcoming such issues.
The leaders from each project briefly introduced their project. A keynote speaker was chosen who had experience getting projects over the line efficiently. A consultation process took place with the leads of each of the three projects for their thoughts on appropriate workshop topics to ensure that the maximum benefit was derived from the eHealth Ireland Ecosystem meeting and that a high quality set of recommendations could be produced for advancing these projects. For a full list of speakers and topics from the event see Appendix A.
The meeting was attended by at least 140 delegates. Delegates included health professionals, medical educators, research students, nurses, general practitioners, industry leads, policymakers, patient group representatives, and service users. A consultation process took place with representatives and service-users for their thoughts on appropriate workshop topics to ensure that the maximum benefit was derived from the eHealth Ireland Ecosystem meeting and that a high quality set of recommendations could be produced for advancing these projects. For a detailed breakdown of registered delegates, and their organisations, please see Appendix B.
Companies had the option to bring along mini pop-up exhibition spaces, the following companies exhibited on the day:
|Opensky Data Systems Ltd||Cerner|
Format and rationale
The plenary session included an introduction from HSE CIO, Richard Corbridge, emphasising that the use of technology in healthcare will inevitably save lives.
He was followed by keynote speaker Olive O’Connor, the founder of MediStori. She brought the attendees on a journey through her experiences which lead to the creation of her medical organiser/journal, MediStori. Throughout her inspiring presentation, Olive spoke about the importance of collaboration between all stakeholders.
Delegates were then given a brief overview of each Lighthouse Project:
- Dr. Colin Doherty, Consultant Neurologist at St James Hospital, presented on the epilepsy project. He introduced PISCES (Providing Individualized Services and Care for patients with Epilepsy) and its concept of precision medicine – where the treatment is personalized to the patient taking into account all the factors influencing their conditions.
- Dr. Barry White, Consultant Haematologist at St James Hospital, highlighted the key requirements of integration between stakeholders, the need for data repositories and the use of open source platforms as a vital element of the future of the haemophilia project.
- Mr Mel McIntyre, Managing Director of OpenApp, and Dr. Seamus MacSuibhne, Consultant Psychiatrist in St Luke’s Hospital, presented on the bipolar project and focused on the need for user centric tools and confidential communication systems.
Each speaker emphasized that technology is a wonderful enabler for healthcare provision but is not the sole solution, and that the integration of systems is key to success.
Each table had a specific theme or topic to discuss:
Governance and Ethics
Bríd O Meara, Aware
Consent, usage and confidentiality limits
Dr Bróna O Neill, OpenApp
Service user perceptions and expectations of the EHR
Rick Rossiter, See Change
Clinical engagement: general practice and nursing expectations of the EHR
Dr Seamus MacSuibhne, St Luke’s Hospital
IT challenges and online security
Mel McIntrye, OpenApp
|How do we ensure eHealth solutions address the correct problem? What are the service user perceptions and expectations of the EHR?|
Dr Barry White, St James’s Hospital
|How could service reconfiguration improve the quality and efficiency of care provided? What are the principal IT challenges around delivering this project?|
Feargal McGroarty, St James’s Hospital
|How can an integrated health system improve care of PWH in emergencies? Is there a theory or model of implementation that explains this successful development and adoption of the Haemophilia solution? If so, is it applicable to other chronic diseases?|
Siobhán Duggan, GS1
|What is the best model for delivering the genomic interpretation for each participant?|
Dr Gianpiero Cavalleri, RCSI
|How do we ensure ehealth solutions address the correct problem? What are the service user perceptions and expectations of the EHR?|
Dr Jamie Saris, NUIM
|How can ehealth promote/facilitate patient-centred care? How can we keep an eye to the horizon so that we are designing future -proofed health services?|
Cora Flynn, Beaumont Hospital
|Is there a theory or model of implementation that explains this successful development and adoption of an ehealth solution? If so, is it applicable to other chronic diseases? What pre-planning or pre-implementation research is needed prior to facilitating people with epilepsy direct access to the EPR?|
Dr Jarlath Varley, RCSI
|How could service reconfiguration improve the quality and efficiency of care provided?|
Dr Colin Doherty, TCD
|What are the principal IT challenges around delivering this project?|
Brendan Dunleavy, Ergo Software Solutions
Analysis of workshops
A consolidation of the table discussions was compiled to encourage the progression of the three Lighthouse Projects.
- Patient safety and improved healthcare must be the goal of each project, taking priority over budgetary matters.
- Data protection and governance structures, access and consent in particular, were key issues across all three projects.
- Integration is key, but challenging.
- Engage hospital managers to address the challenge of integration.
- Close engagement with patients from the beginning to ensure that any new portals are valuable to them.
- General practitioners should be engaged with to ensure better integration with primary care systems - development of shared care model very important.
- We must learn from prior experiences how to efficiently develop patient portals.
For a full compilation of the workshop feedback see Appendix C.
A consultation process took place with the HSE and project leads to solicit their thoughts on how the topic would be best approached. This process ensured that the maximum benefit was derived from the eHealth Ireland Ecosystem meeting and that a high quality set of recommendations could be produced for advancing the three Lighthouse projects.
An initial meeting with the Ballsbridge Hotel staff was held in order to determine most appropriate room layout settings and any other facilities required.
Contribution of project team
The event was professionally facilitated by HISI and the ECHAlliance, who planned, managed and delivered the meeting.
There was a strong uptake on social media from delegates in discussing the topics further. #eHealth4all was a top trend on Twitter during the event. See Appendix D for feedback from delegates.
The views expressed by speakers and delegates are their own, and not those of the HSE.
Appendix A: Agenda
Registration and networking
Richard Corbridge, HSE CIO
Olive O Connor, Expert by Experience, Creative Founder, MediStori
Introduction to Lighthouse Project Leaders
Mary Cleary, Deputy CEO, ICS/HISI
Lighthouse Project: Epilepsy
Dr Colin Doherty, Consultant Neurologist, St James's Hospital
Lighthouse Project: Haemophilia
Dr Barry White, Medical Director, Consultant Haematologist, St James's Hospital
Lighthouse Project: Bipolar
Mel McIntyre, Managing Director, OpenApp
Dr Seamus MacSuibhne, Consultant Psychiatrist, St Luke's Hospital
Coffee and networking
Feedback / Q&A
European Connected Health Alliance – Update
Liz Ashall-Payne, Outreach Coordinator, ECHAlliance
eHealth Ireland Reaction and Next Steps
Richard Corbridge, HSE CIO
Appendix B: Delegates by Sector
Appendix C: Workshop discussions
Click here to download a copy of the points discussed during each workshop.
Appendix D: Delegate feedback