The Lighthouse Projects on Epilepsy, Bipolar Disorder and Haemophilia was the main focus of the fourth eHealth Ireland Ecosystem meeting which took place in the Ballsbridge Hotel on Tuesday 1st March last.
There were more than 200 delegates in attendance where there was much discussion and energy in relation to the Lighthouse Projects being undertaken by eHealth Ireland this year. Participants included the HSE, the Department of Health, hospital clinicians, nurses, patient organisations, industry leaders and vendors. This diverse gathering all came together to consider the Lighthouse Projects for Epilepsy, Haemophilia, and Bipolar disorder in relation to the Electronic Health Record and how stakeholders can be involved or support the projects.
Richard Corbridge, Chief Information Office for the HSE, introduced the audience to the Lighthouse Projects, emphasising that the use of technology in healthcare will inevitably save lives. He was followed by the keynote speaker for the day Olive O’Connor, the founder of MediStori. She brought the attendees on a journey through her experiences which lead to the creation of her medical organiser/journal, MediStori. Throughout her inspiring presentation, Olive spoke about the importance of collaboration between all stakeholders.
"The eHealth Ireland Ecosystem is exactly what "healthcare" should be - a partnered, proactive, personalised and practical environment, with patients at the centre of all it does. It was refreshing for me, as a patient and carer myself, to be in a space where everybody had their say. There was nobody in the room who didn't want to be there, and all wanted the same outcome - to help make our health service the best it can be, with technology as an enabler, and people as the engagers. I am delighted to be part of such an exciting initiative!" Olive O'Connor, founder of Medistori
Delegates were given a brief overview by each of the Lighthouse Project leads: Dr. Colin Doherty, Consultant Neurologist at St James Hospital, presented on the Epilepsy project. He introduced PISCES (Providing Individualized Services and Care for patients with Epilepsy) and its concept of precision medicine – where the treatment is personalized to the patient taking into account all the factors influencing their condition. Dr. Barry White, Consultant Hematologist at St James Hospital and Mr. Mel McIntyre form Open App presented on the Hematology project. They showed the key requirements of integration between stakeholders, the need for data repositories and the use of open source platforms as a vital element of the future of eHealth projects. Dr. Seamus MacSuibhne Consultant Psychiatrist in St Luke’s Hospital in Kilkenny presented on the Bipolar project and discussed the need for user centric tools and confidential communication systems.
The Lighthouse ecosystem event was a fantastic opportunity for all stakeholders to connect around a table. Each person is being given the opportunity to develop and collaborate to bring efficient and relevant end solution requirements. Yvonne Goff, Chief Clinical Information Officer, OoCIO
Once again, the Irish Health Informatics passion was on display at our recent ECOsystem event to bring us further on our journey towards a national EHR. It was great to see the community embracing innovation by getting specific about patient benefits and also avoiding silos by keeping a solid focus on process and information commonalities. I am looking forward to seeing how outputs from the event materialise and to more ECOsystem collaboration. Professor Gaye Stephens, Trinity College, Dublin
Each speaker emphasised that technology is a wonderful enabler for healthcare provision however is not the sole solution, and that the integration of systems is key to success.
Delegates were given time to collaborate with facilitators where each of the Lighthouse Projects were discussed. The workshop highlighted potential challenges that might be encountered and explored possible solutions for overcoming such issues.
A full report of the output of the collaboration workshop will be published on www.ehealthireland.ie.